The CJD International Support Alliance (CJDISA) was formed by a group of grassroots nonprofit organizations that share one vital factor: a commitment to prion disease victims, their families, and those at risk for prion disease. CJDISA was founded to fill the gap that exists on an international level and to assure excellence in the service to individuals affected/at risk of prion disease, their families, and caregivers. The participating organizations are dedicated to work together in meeting the educational, social, emotional, spiritual and practical needs of those they represent. Under the CJDISA umbrella, these organizations collaborate on educational initiatives, information dissemination, resource allocation, program design and implementation, and advocacy.
Click on the following links for more information related to their Mission, Vision, Goals and Objectives.
Contact: Suzanne Solvyns
Telephone number + 61 298998905
Email: contactus@cjdsupport.org.au
Website: www.cjdsupport.org.au
Contact: Florence Kranitz
Email: help@cjdfoundation.org
Website: www.cjdfoundation.org
Telephone + 1 330-665-5590
Email: info@cjdalliance.net
Website: http://www.cjdalliance.net
Registered Charity 1097173
Contact: Gillian Turner
Telephone number: +44 (0)1630 673973
Email: help@cjdsupport.net
Website: www.cjdsupport.net
Contact: Deana M. Simpson, RN
Specialty: Familial CJD
Telephone number: + 1 586-914-2215
Email: dsimpson2@dmc.org
Website: www.cjdinsight.org
Associazione Italiana Encefalopatie da Prioni ONLUS
Contact: Roberto Borgis
Telephone: + 39 348 88 11 514
Email : info@aienp.it
Website: www.aienp.it
Contact: Muneto Ueda
Telephone: +81-573-62-4970
Email: cs-net@takenet.or.jp
Website: www.cjd-net.jp/EnglishPage.htm
CJD National Conference
May 17, 2008 - May 18, 2008
Sponsor: CJD Support Group Network Australia
CJD Family Conference
July 11, 2008 - July 13, 2008
Sponsor: CJD Foundation USA dfs
More info on the sponsor's websites